The family is currently in the stages of working with the medical team at Rainbow to transport Evan to a hospital in Chicago where he can receive the therapy he needs. A current update shows that he is beginning to make responses with his eyes in response to light.
(Family photo of Evan)
I remember being a "resident parent" of Rainbow all too well because of the time we spent in NICU with Michael when he was just a tiny baby. The sting of sleepless days and nights, staring at monitors, waiting for the daily doctor's rounds, one day encouraged and the next completely discouraged, a constant knot in your stomach and being in constant overdrive. I am forever grateful to God and the medical staff at Rainbow that we we "got our baby back". I also know how expensive it was just for a week and a half to not live at home, and here the Pattisons are going on over a month and a half, ready to embark on a journey to Chicago. This family is stronger than you can ever imagine. Having a child with Autism in the first place is a series of one step forward and three steps back and now this. If you read the updates from Evan's mom, they are never without request for prayer for another family she has met in the hospital going through the same motions. I cannot wait for the day to read an update that she "got her baby back" too.
How you can help:
The reason I posted this here on my blog is because I want as many people as possible to be able to read this and not everyone has Facebook. Through my Scentsy business I finally have the resources available to to a fundraiser for the Pattisons. I first want to say that 100% of my "profits" through this fundraiser will go to the Pattisons. This is not a solicitation for my personal gain in any way. Here is the double whammy:
If you want to be a part of the Pattison Fundraiser, but are not in the market right now for anything Scentsy, her ya go! Sasha the Bear is $30.00 and Scentsy will donate 100% of net proceeds from each bear to Ronald McDonald House Charities®.
You can purchase this bear and choose to have her donated to a sweet patient at Rainbow Babies and Children's hospital! If you would like to do this, please email me with your order so I can arrange it. In turn, you will have "paid it forward" THREE times! The proceeds that Scentsy pays me go to the Pattisons; Scentsy's proceeds go to Ronald McDonald, AND a child gets a new best friend! Sasha is not just a teddy bear, she is a Scentsy Buddy. Each Buddy has various textures on each part of them and have a pouch in back for a soft Scent Pak. The best scents if used for a donation for a child at the hospital would be: Vanilla Cream, French Lavender or Black Raspberry Vanilla. These would have the best soothing effect, coupled with the textures of a Scentsy Buddy for a child.
Any purchase in any amount of course will be so appreciated for the Pattisons. Thank you for reading this.